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Crystal

There are so many amazing gluten free alternatives anymore. My oldest daughter has been gluten free for almost 8 years now. We haven't done the intestinal biopsy to determine if she really has celiac, but she most definitely cannot digest gluten (and now dairy?!) She has a special snack in her classroom, always brings lunch from home, brings a gluten free cupcake to birthday parties and I bake everyone's birthday cakes so she can have them too. I make gluten free pizza often & we all eat it. We actually prefer it to anything we can buy.

It's tough at first, but after awhile you get used to it. You know what to look for. What questions to ask. The best part if having a growing, healthy child. Annie would probably be surprised at all the other kids around that are also gluten free. My daughter is only a year younger than Annie. If you have any questions, feel free to email me. Deep breaths Mama.

This site has great gluten free recipes. I highly recommend it. http://www.thebakingbeauties.com

Bev

my grandson is fructose intolerant. No fun when you like bananas and grapes and all the other fruit choices there are. And it's not just the fructose but even too much regular sugar will push him into diarrhea for days. OMG the fructose and sugars that are in absolutely everything!! When we first realized it all, I thought a good ole peanut butter sandwich would be a good thing for him....except when you read the labels, it is NOT! So now it is all about reading every label every time to determine IF or how much of something he can have. We have found a balance since he can tolerate a certain amount every day without symptoms.

val

Sounds like you're doing amazing things to support a healthy gut. With Annie being on board it sounds like the food issue will get less guilt ridden. One minor thought is if you want a brand recommendation, go with Garden of Live raw probiotic, and they have excellent vitamins.

I realize neither of you may want to go to another doctor but seeing a chiropractor can be helpful. If the spine is our of alignment it affects the nervous system and that in turns affects the function of the organs. I'm suggesting this as a way to support the other changes you've made.

Kuddos to you for making these changes!

Shan

Annie is just like my Ari who is 11 now. Belly aches started around 4 and blood work came back positive for Celiacs around age 8 but biopsy did not so we say she has a gluten sensitivity. She has woken up a handful of times the way Annie did. It's a terrible feeling as a momma to watch you baby go through that. I used to/sometimes still do get the feeling that she is the odd kid out and all of my kids are crazy hyper aware of what she eats even though they are all younger than her. I started to be gluten free to help her not feel so different but was so surprised when I tried to add gluten back into my diet that I became very sick so we are gluten free for life now. It will get easier for Annie and it's so much more popular and gluten free food is much more accessible than it was even 10 years ago. I've been wondering how Miss Annie was doing. Glad to hear you have a local specialist and I'll pray you get in soon! Hugs to you all!

Tina

Karen,

you are amazing!! My husband was diagnosed with Celiac 7 years ago and I felt like you -- totally overwhelmed at the idea of having to find something he could eat at a time when there weren't that many GF products around. Over time though, things got a bit easier and while he still misses certain foods, it's worth it considering how he feels when he cheats. My son was diagnosed about 6 months ago - that was a lot harder because he's only 4 and can't quite understand the difference yet himself. Although, he loves bananas and always asks me if those are gluten-free:) In any case, I would be happy to email you some recipes and products we find to be tasty and reasonably prices. Let me know and I'd be happy to help!

Tina

anonymous

I would suggest to cut out all artificial sweeteners. I had really strange sweaty shaky stomach problems for years and went through every test (they called it SIBO because they had no idea what else could be wrong) before I figured out it was the vitamin water zero I was drinking every day. I then had to rebuild my good bacteria in my stomach by eating fresh fruits and veggies, (leeks and Jerusalem artichokes are great for building up the healthy bacteria), and I only use honey, or coconut sugar or maple syrup to sweeten. I took me about a year to get better, I went from feeling sick after every meal for at least a year to now I eat anything I want and feel great. It takes a long time to change the gut, hang in there!

anonymous

also peppermint oil supplements worked wonders after meals.

Denise M

Oh my heart! I am that weird kid. I've lived with a cranky gut and a million severe food allergies/sensitivies my entire life. I could not imagine having to watch my child endure it. Removing gluten from my diet was the number one best thing...on occasion I get frustrated and eat a "REAL" cookie or a bite of something normal only to want to die from the gluten-ing. No judgement just lots and lots of understanding love and hugs to you both!! Hoping with time and finding the right combo she feels better.

Kim A

I would advise you to stop feeling guilty, but I understand that it's what we parents do when our kids are in pain. My #1 book recommendation would be "It Starts with Food." My #1 website recommendation for great recipes would be theclothesmakethegirl.com. And my #1 food/supplement recommendation would be bone broth. Seriously; bone broth. Annie is lucky to have such a strong advocate in her corner.

Kelli

I just read the comments, Vitamin water nearly killed me at Disneyland! Well, not really, but I almost got a pair of Disney pants because I had Vitamin water, and hadn't eaten yet, went to the park and then as the family was on a ride, I had to run for my life, while clenching, to the nearest bathroom where my stomach then propelled things I didn't even remember eating into the cleanest toilet on the planet. I thought I was dying.

Kristin

Food allergies/sensitivities are the pits!! We have been dealing with it for 3 years now and little immune systems keep changing so it's always something. BUT, when I get overwhelmed (all the time) I have to slow down and take it one day at a time. For some sweet words of encouragement and great GF/DF recipes, check out http://www.smithbitsblog.com/
Good luck and hugs!
P.S. Kim's advice above is the best - try to stop the guilt! The kids are so resilient and we're all raising a new generation who is aware of food issues.

{vicki}

Sorry I have never had to deal with this nor do I know anybody that has.
but I did want to send a
GREAT BIG HUG TO ANNIE!---Hope you get better soon sweet girl!

Gayle

I'm so sorry to hear about you and Annue struggling with her illness. My niece is having some chronic health problems and, though she is much older than Annie, I know how frustrating, stressful, and scary it is for my sister. I'll pray that you all can find the help you need. So very glad to see you back on the web!

Heather

Hugs to you! We are going through similar things with most of our 8 children so I totally GET what you're feeling. We can't do dairy, gluten or yeast. YIKES!!! I've decided to just cook that way for us all because it's too hard to make separate meals. (Hubby & I save some special treats for after littles go to bed.) We are working with a naturopathic dr also. It is overwhelming at times but I'm thankful we are learning how to heal our bodies and put an end to feeling crummy. I'm trying to enjoy the new foods & I am thankful to God for all the resources out there! I'm also thankful for older children that help cook!

"Practical Paleo" has been a great resource!

ange

Greetings from down under. I too deal with some similar issues to Annie. I wish they'd figured out my problems at a younger age. There is an absolutely fabulous app (available for iPhone and Android) put out my Monash University. the app is called The Low FODMAP Diet it does cost but is an absolute god send. it shows you which foods you can eat a little of and which you can't using a traffic light system. it also allows you to record comments about food. the app also has recipes and the ability to create shopping lists. Monash is the home/ origin of FODMAP research so I would highly recommend. they also have some fabulous recipe books!

I also avoid gluten as much as possible..as it was also doing awful stuff to me.

My life and health is so much better (and visits to the loo per day much less frequent). I catch colds and the flu lesss than I used to and have so much more energy!

Please also have her B12 levels checked. Often those with digestive issues have low levels of this..and it's vital for good health. I've discovered I don't absorb it naturally at all so get regular shots.

Good luck with it all. She'll feel so much better :). Feel free to email any questions.

Heather

wow. I have always thought that your Annie and my Chloe were so similar in looks and last children,personalities, etc. And yes Chloe has a fructose intolerance as well after years of tummy issues. Hers however is not as extreme. Chloe just has to avoid apples, juice of any kind of course, candy, most baked goods, pizza, take out anything, oy, lol! But she can have a lot of other things that Annie cannot. It is worth it to try and figure it all out, those tummy issues are so bad!!!! I am hoping she out grows it and you know, it could be worse. It really could. Hang in there.

Marci Taylor

Wow, I was holding back tears as I read through this. I have been following your blog off and on for many years now, but hadn't looked at it lately. Today I did. I can so relate to Annie's story. I'm 35 now, but have had stomach troubles my whole life. As a baby I was highly intolerant to dairy as well as many other foods and until I was a toddler, my parents had me on a rotating diet, making sure that I didn't eat the same food more than once every 5 days. Later on in high school, the same stomach issues resurfaced. I remember being out with my boyfriend and his family one night, and crying in pain all the way home in the car after dinner. There were many other nights like those. All through school the doctors told us it was stress related and I was on and off medication for my stomach & allergies. Then, 10 years ago, it started all over again, this time with often severe panic attacks. I would have a panic attack pretty much anytime I ate... I felt like I was chocking, had gas, got shaky... I basically stopped eating solid food for months and lost so much weight that my friends and family were truly concerned. My family doctor was useless, just wanting to put me on anti-anxiety medications, so I finally turned to a naturopath. My first few visit were just as you described for Annie... leaky-gut, food-sensitivities, and hundreds of dollars worth of supplements. Slowly, I started to feel better, the anxiety lessened, and I became healthy again. Fast forward to January 2014. New Year's morning, at 5:00 am I was in Emerg feeling worse than ever. I ended up in the hospital about 4 times that month, once hooked up to an IV for fluids. They told me I had the flu, and again, my anxiety was back at it's worst. As a thirty-four year old adult, I had my mother staying with me almost every day, and helping out with my one-year old son, because I felt so sick. Again, family doctor just wanted to prescribe more meds, so back to naturopath I went. We did the IgG food testing this time as well, and just like Annie- I was highly sensitive to eggs (the worst for me), dairy, soy, gluten, and wheat. Thankfully I'm okay with the meats and vegetables and fruits (although on the higher level for mushrooms and cranberries). I was relieved to know, but like you, felt hopeless at the same time. No one really understood what I was going through either, it seemed. I started a 28 day detox at that point, and my family would call me a martyr when I would get upset because I couldn't eat what they were eating. They thought I was being dramatic and extreme, even though they had been through all of the sickness with me before. The detox helped, but made me miserable. At the end of it, I vowed to eat as well as I could, but allow myself the occasional treat. This has been a continual struggle, and I have had a few set backs since then, but slowly things are getting better. I still wake up at night sometimes, sick to my stomach and shaky. If I really veer off track I pay for it. Alcohol has always been an issue for me as well, and I have always had a really low tolerance. Now, having more than a drink or two will give me a terrible "hangover" for the next two days. Paleo and Primal diets and recipes have helped, but are still a struggle, because I am so sensitive to eggs, a staple ingredient in both. When my son was born, I was so nervous about how he was going to react to foods. I breast fed exclusively for the first 10 months, and then gave him a very limited diet of fruits, vegetables, and protein. I continued nursing him until 18 months, and then switched to goat's milk. He's two now, and thankfully so far, he seems to be able to tolerate pretty much anything. Due to my own limitations, we all eat pretty clean, but I'm not as strict with his diet anymore and he does have more of the "bad" stuff than I do with no problems. Best of luck with Annie- I hope this new specialist will finally be able to give you both some relief.

Audrey V

I understand your feelings of being overwhelmed, but this is not so rare. Basically, eat paleo with some modifications. Lucky for you, there are two great books out there:
http://www.thepaleomom.com/autoimmunity/the-autoimmune-protocol
Another good reference is Practical Paleo:
http://www.amazon.com/Practical-Paleo-Customized-Whole-Foods-Lifestyle/dp/1936608758
It's great that you're on the right track. The Paleo Autoimmune book is extremely comprehensive and will tell you everything you need to know.
Hang in there, you're on the right track!

Tracy DeShazo

I have a son, who is now a grown man but came down with severe bloody diarrhea just out of nowhere. He was 8 years old at the time. He doesn't have the food allergies that you are speaking of. To make a very long story short, it took us months to get a good diagnosis. That was done with a pediatric gastrointestinal interologist. He immediately did a colonoscopy and was diagnosed with ulcerative colitis. So I believe when you get your child into that kind of specialist, they will work wonders! Best of luck to you. And you have to remember, this illness with your child is not your fault! I will check back in with your blog and hope she sees the specialist very soon!

Robyn :)

No insight to share (I just have an infant at the moment with gas issues), but wanted to tell you it sounds like you are doing all the right things and Annie has a great attitude.

Nancy

Sixteen years ago my daughter (aged 10 at the time) was diagnosed at the local children's hospital with Eosinophilic Gastroenteritis, which is one of several eosinophilic conditions that are still considered rare. It was a newly discovered condition at the time and we were extremely fortunate that one of the pediatric gastroenterologists in our city was becoming educated in its symptoms and treatment. It was explained to us that she was allergic to something she was eating or breathing but ruling out the cause would be difficult. In reaction to the allergen her body was producing a huge amount of eosinophils. They were embedded in the lining of the intestine where they produced histamines that were causing her nausea, vomiting, fatigue, pain, etc. She was treated with a combination of medications (Zyrtec, Singulair among others), as well as biofeedback to handle the emotional component of it all. After many weeks she was much better. The condition tended to flare up in the fall and spring (both high allergy times)and she had some rough recurrences. She has been quite healthy for five years now and is productive adult with a busy career.

Through it all, I had to be extremely grateful that she had a "mild to moderate" case. Some children with these conditions have so much damage to their esophagus, stomach, etc. that they are not able to take anything by mouth and are tube fed. I would encourage you to ask your doctor about it. Parents of children with these disorders started a non-profit organization with a huge amount of information; www.apfed.org

Sending you strength to continue the search for the cause of her symptoms...it can be a long and difficult journey!

Melanie

Oh my gosh, Karen. This sounds so difficult. It would be so hard to limit Annie's diet like that. Kids are kids, they want to do the same things their friends are doing. I was diagnosed with RA in May and I recently came across this blog/website, http://againstallgrain.com . A lady named Danielle Walker came up with Paleo recipes that mimic regular food items after she was diagnosed with an autoimmune disease. I bought both of Danielle's cookbooks and my family and I have loved the recipes that I've tried from it. There are a lot of recipes listed on her website too. It might help making food that looks/tastes like the real thing for Annie. Sending hugs.

Terry Enge

Karen, So sorry to hear about Annie's troubles. Have you heard of Against All Grain? The gal has an amazing testimony and was so sick she nearly died. Her website has recipes and lots of advice and is currently on a book tour for her most recent book. I hope you find the perfect plan for you and Annie!

Sarah

I will say, as far as my son goes, the turning point (of trying to balance what he was eating, regulating everything he put in his mouth) was when he started to realize how bad the food was making him feel and that he would rather avoid it then feel bad. Even for the one day a week he had pizza for school lunch (what is it with pizza day at school) and even for the cupcakes for school parties. My son's school used to do a great job notifying me in advance so I could send a safe treat in for him. He is to the point that he just saves something from his lunch box on those days. He is only 8 and does a relatively good job self regulating what goes in his body. We still have hiccups...and sometimes those hiccups look like your daughter's where he is in severe pain. After those hiccups, we all tend to go back to hyper vigilance and his sisters constantly ask if he should eat something, I check with the school every day to remind them no food that isn't his, I have to prep everyone repeatedly when he is going with them to be super careful. I have come to think that it isn't easy and it really stinks. Wyatt (my son), is much more easy going about it now that he feels better most of the time and the episodes are few and far between (last one was in August for three days).

Audrey V

thepaleomom.com and paleoparents.com are awesome. Paleo parents has sample menus for kids, like what to pack in their lunch box. The paleo mom has consulting services that are very professional and that I think would help get you started and help your anxiety level. This isn't that hard, it just seems like it. And there are A LOT of healthy foods that she can still eat. Once you get a handle on this, you might feel grateful that you figured this out now rather than when she is older.

Danielle

There's a blogger named Jen Morris that had similar issues...her blog name is "a thousand words." Not sure if you know of each other, but she may be able to help.

Laura

So sorry you are going through this. I don't think there is anything worse than watching your children in pain. I know that overwhelming feeling and the guilt that follows. Praying for Annie's healing and your peace.

Kristina

My daughter had a swallowing problem. she had to eliminate six items from her diet (wheat, egg, soy, milk, nuts, and shellfish) for two months. IT WAS NOT EASY. I cried for her. But she was a trooper. And she was 17. She was tested to see what her levels were at the end of two months and it was used as a reference point. Then she was able to add one item back at a time. At the end of each six week mark she was retested and told "yes you can keep the item in your diet. you are not allergic to it" or "sorry but no. You need to eliminate this item from your diet for life". This was done with each item. It took a year (longest year of her life). It turned out she has an allergic reaction to three of the six. Of course the three hardest items to live without. It is a difficult process but you need to be strict with it to be able to find out what is causing her issues. You don't want any false results. Good luck and sorry to hear about Annie!

janel

Goodness, reading this is overwhelming. I am so sorry....sending healing hugs, hopeful that the new Dr. can shed some light on this...and that your dedication and unending love for sweet Yans helps! Hang in there.

Kellie

No Judgement here....parenting is tough! Especially because who wants their child to be restricted in any way? Nobody. Well, nobody normal. I also have a friend who had a daughter with similar issues and then as she got older they added one thing back at a time and now she can all of the things she couldn't for all of those years. Praying this new doctor will help get to the bottom of things!

Kellie

Also, another thing...Em suffered with reactive airway disease as a child and it got pretty severe in 4th grade to the point that she only using half of her lung capacity. She would get some drainage from an allergy, turn to sinus infection, bronchitis, then pneumonia. They gave her so many steroids that they suppressed her bodies ability to make its own steroids. Then for a few years there was nothing and then last year BAM it was back with a vengeance. Worse than ever before. She was up to taking NINE medications a day...I felt awful for her. She does competitive cheer, basketball, and soccer and suddenly my very fit child got to the point that she would ask to taken off the court or field after just a couple minutes because she just couldn't breathe. They did tons of testing and they all supported poor lung function. Last spring we went to a differenty pulmonology specialist and after several visits he said let me try something...and had her hum during her breathing tests....it was her vocal chords, not her lungs. When she would begin to breathe deeply they would close...and therefore she couldn't breathe. As soon as she stopped her breathing would return to normal. At some point a bronchitis bout she couldn't breathe and panicked. After that as soon as she started to breathe heavily it would trigger that anxiety. She still takes allergy meds and 1 asthma med during the fall bec she is really allergic to ragweed and the spring, but that's it. Strange things happen.

Diane

I feel Annie's pain. Oh do I feel it. I've had issues since I was 18, now I'm 42 I have horrendous stomach issues, mild being gas and cramps and severe is on the toilet with what feels like razors coming out my backside, coupled with cold sweats and nausea. It's awful. I also have seasonal allergies, the worst being ragweed in the fall. Bloodwork came back showing sensitivity to dairy, gluten, soy, crab and corn. I made the connection this fall between these food allergies, daily intake of allergy medicine for the ragweed and the significant decrease in my stomach symptoms. Traditional doctors were of little help. After seeing a gastro, and having a small intestine biopsy with a colonoscopy, I learned I do not have cancer. He was so traditional, he wouldn't even entertain the idea of allergy. Change is hard. I'm the one dealing with the repercussions, and yet I still eat foods I shouldn't. It's hard to make a commitment and stick to it when you're beside yourself starving. My advice for you is to let go of the guilt. Really. I also recommend setting yourself up for success. When are the times she is most likely to eat foods she shouldn't? For me, it's when I get home from work. The first thing I do is grab some Oreos to get rid of the I'm going to die if I don't eat something. Now I have some safe snack bars in my car and I eat them on the way home. I also recommend, as hard as this may sound, to convert the whole house while at home. Besides that being a short order cook, making something different for everyone sucks. It'll also help her feel less alone and less different.
My thoughts and prayers are with you all as you figure this out. She can be healed. It just takes time, patience and perservance.

Diane

Also check out this website http://deliciouslyorganic.net/

 Cathy

The Low FODMAP plan worked really well for me. It addresses the fructose thing too. I sent you a link to a simple PDF that I used in an email.
Hang in there :)

Karen

Someone said it above, bone broth. I concur.

Jennifer

Karen, I feel so bad for you and Annie. I am a nutritionist and have been successful putting clients through the Low FOPMAP elimination diet as others have suggested. It really has helped and it does allow more of a variety of food once you pin point where the exact issues are. I never recommend the Paleo diet, especially for a child. This is a great resource www.ibsfree.net.

mandy

Such a pain. I'm seeing an awesome Dr in Grants Pass. Dr. Chambers at the Neuro Clinic. I'm also doing gluten/dairy/soy/sugar/corn free. Not easy for me, I can't imagine being 8:(.

Krys72599

My step-daughter is on a gluten-free diet. She didn't test positive either for celiac, but her doctor suggested, due to her symptoms, that she try eliminating gluten from her diet. The improvement was almost immediate amazing. The same thing happens with her: if she splurges on something with gluten, the reaction, the pain is immediate. It's just not worth it. So even though she's not officially allergic, she follows the diet and is a much happier, healthier person.

Elizabeth

I think you'd find a big help in Danielle's experience at www.againstallgrain.com !

Malinda

Oh Karen! I wish we lived close together and could sit down and brainstorm menus and foods! I have been dealing with similar issues for years. I am almost to the end of a 14 day sugar detox with Marta (https://www.facebook.com/HausOfGirlsFitFamily). I am seeing shocking changes by avoiding sugar, dairy, soy, gluten. I also agree with reading It Starts Ith Food. I am currently reading it and gaining insight. It's so overwhelming. I don't know what to eat half of the time, it Matra is so helpful, as well as Pinterest :).

Holly

Dont know ify ou ever have or go to Chuck e Cheese but even they have gluten free pizza now... so does Uno's Pizzeria if you have one of those. It seems that most places now can safely provide gluten free options which is great! :)

Amy G in SD

Keep up the great work. I could have written many of your sentences above. We went through years of digestive doctoring for our now 13 yr old daughter before we realized gluten and a few other foods were the problem. Her Celiac test came back negative so thought we didn't have to deal with the gluten issue but we were so wrong. All I can say is that with time these things will become your new normal, she will lose her taste for the foods that make her sick and everything is replaceable with an alternate food that she will love in the future. It's just hard to see the future right now because you're so wrapped up in what she can't have anymore and her world is in transition. You are an awesome mom. You will get to a happy place with this because we did. It might take what feels like an eternity, but you'll get there. And it's not the end of the world, it just feels like it initially. xxoo

Wendy

My 16 yr old son has been gluten free almost a year, also gluten intolerant. He's 6'3" and only 150 lbs cause he just doesn't like to eat any more, despite really wanting to gain weight and bulk up. Working full time and he being an active high schooler on the go and playing sports, it's hard to look to the websites and find time to shop & cook gluten free recipes. We aren't getting home till late and need food readily available. Here are some of our standbys besides lots of chicken and white rice: pulled pork in crockpot, tacos with corn tortillas, spaghetti with GF pasta (Prego with our own additions), Udi's frozen GF pizza, Udi's frozen french baquettes, eggs, Canadian bacon, Chex is about the only cereal, King Arthur GF pancake mix, GF Bisquick for waffles, caramel rice cakes, popcorn, bananas (he dips then in melted choc chips when he gets a sweet tooth). We also cook up GF elbow pasta and use the KRAFT mac & cheese packet to make mac & cheese that tastes like he's used to. Lunch is definitely the hardest (being an open campus where most kids go to fast food places), as is traveling. No fast food options, nor a Subway near us that has GF bread (wish we had Togo's because they have GF options), so eating out is a challenge. Fortunately the GF food is getting better, but our grocery bill has sky rocketed! As for homemade choc chip cookies, we use Bob's Red Mill flour mix and their recipe to make very close to original toll house cookies and pie crusts for homemade berry & apple pies (adding a little xanthan gum). We use Berry Crocker's chocolate cake mixes for cakes & cupcakes, and those are pretty good too. This week we made rice krispie treats using GF Rice Krispies cereal. Kids loved them. Although we've found all gluten free baked goods taste so much better warm and right out of the oven. I am always looking for suggestions from others on easy GF foods that kids like to eat!

Valerie

Oh Karen my heart goes out to you and Annie. I don't really have any advice, just empathy. My daughter is allergic to wheat, dairy, eggs, peanuts, tomatoes, and oatmeal. People ask me all the time, then what do you feed her? A lot of meat, some veggies and fruits, rice. She's only 2 yo so still pretty picky. When I bake for her it has to be vegan. I've found a vegan cupcake recipe that she likes and she loves the enjoy life chocolate chip cookies. We've had to deal with this since she was 6 months old so thankfully she doesn't know any better. I have days that are still hard. The other day I found out my grocery store stopped carrying her Tyson gluten free chicken nuggets ( which are a staple in her diet) and started crying in the middle of the store. Later that night I found out Walmart had them so my crisis was solved. When I was first hit with this I thought I thought our world was over, but it becomes a habit and so you all get use to it. It takes time and money. Eating healthy is expensive. Just give yourself and Annie time to adjust. It will get easier!

Janine Fox

Oh Karen I am so sorry to hear that. I can only imagine how difficult it is to navigate all of that. I'm sorry I don't have any light to shed on the matter but just sending you and Annie a virtual hug xxx

Jennifer Loewen

As close to natural restoration of gut bacteria as possible; possibly will heal all food intolerances; incredibly gross and tough to get used to the idea (but it's healing my prednisone dependent colitis) check out www.thepowerofpoop.com

Join the FMT Facebook on that site group to access the experiences of 100s of people in healing debilitating gut issues/diseases in very natural ways...in combination with traditional medicine.

By using the information I gleaned through interactions in this group I avoided my March 25th surgery date to remove my colon and have been Rx free for 3 months now (any previous attempts of that landed me in the hospital). It changed my life. I live again and I don't restrict my diet anymore. It's all about the right balance of gut bacteria...it makes sense.

What sold me on it? No one is getting rich on this idea. IT works! Mind you, you need to constinue as you are with a lot of research for Annie's particular case and finding an MD and ND who will augment your personal learning as their ethics allow and not try to derail your train.

I'm not wacked out! ;-). I'm someone who no longer is watching life pass me by for lack of energy, bath rooming issues, pain and endless appointments. Healthier than I've been in at least 7 years! (Got my diagnosis 4 years ago)

Nicky from Okotoks

Hang in there Lady - you can do this. We did this with Brody several years ago with his Autism and it worked tremendously for many different reasons.
I will send you an email with some great resources, and recipes and all sorts of wonderful stuff that will be well loved and you won't even know the difference. WE had to do egg free, dairy free and gluten free!!

Janna

I am in the same boat with myself and my 2 daughters with the multiple food allergies:( I have autoimmune also. Haven't had my 2 sons or my husb checked for allergies yet but I say you are doing the best you can and just keep looking/working on it until you find a medical advisor and protocol you are comfortable with that WORKS.

I just wanted to comment so I could say LOL Josh Downs! What is it with guys....my husb said the exact things - "maybe you should swing a dead cat over your head at midnight" etc. Crack me up!!! But he can't argue, that after 7 yrs of doctoring with my whole body chiropractor in Portland, I am a much different wife and mother than I was before all the "voo doo" started:) I hope it all gets worked out soon and Annie feels much better!! It's a long hard road to wellness sometimes but SO worth it!!! Take care Karen! You are an awesome mother!!!!!

Angie H

I just saw this on facebook and though it would not hurt to read might be something you could use..

Heal leaky gut, overcome foods intolerances and allergies, improve joint health, reduce cellulite, and boost your immune system with Beef Bone Broth!

Beef Bone Broth Recipe - DrAxe.com


Bone broth is rich in nutrients like gelatin and glycine which help to protect and heal your gut lining, skin and digestive tract! Try this healing recipe!


http://draxe.com/recipe/beef-bone-broth

Lauren

Poor kid! Have you tried olive leaf extract, bicarb soda, liposomal vitamin c or colloidal silver? All worth a shot, especially bicarb for the heart burn.

Stephanie @ La Dolce Vita

no insight other than to send some prayers for your sweet baby girl!

Dana F.

Four years ago, after 2 years of horrible and life-altering symptoms, I was finally diagnosed with SIBO. The highest positive breath test my doctor's office had ever seen. I finally had an answer. I improved with a course of Xifaxin but the SIBO slowly kept creeping back. I finally researched on my own and learned about the Specific Carbohydrate Diet, the GAPS Diet, and the Paleo Diet.

I follow something resembling all three and have kept my symptoms at bay and have not needed more antibiotics.


I am so sorry Annie is dealing with this. But I commend you for all of your "witch doctor" efforts (my husband calls it the same thing! lol) Keep at it and I'm sure you'll have Annie feeling her best! She's in my prayers.

Mary Anne Prost

Have had years of symptoms and took Carafate (ulcer med) before each meal, given by a GI, for a few years. GI also gave me reflux med, though I didn't have reflux. After quitting those GI docs, going completely gluten-free helped some.

Now working with a naturopath. Doing a liver detox helped some. Symptoms are random and I can't correlate them with what I've eaten. But my symptoms, which include predominantly horrible belching, bloating and discomfort, are worse at night. Then did testing and found to have SIBO and multiple food sensitivities.

Planning to start treatment after the first of the year, or sooner, with the natural antibiotics rather than prescription only because they cost less and SCD diet. I also just finished reading A New IBS Solution by Mark Pimentel, MD. This explains, as my naturopath did, that eradicating the small intestine bacteria is one step, and keeping it gone is another step. This requires a restricted diet.

Hope this is helpful. I'm sorry your young daughter has suffered so.

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